Providence Regional Cancer System Survivorship Blog

Entries in In the words of our patients (8)

Tuesday
Nov082011

92-year-old war veteran reflects on cancer diagnosis

When John Hogan’s family moved to Seattle in 1941 John took the opportunity to join the Army. It was during World War II and there was plenty to do. He was stationed at Fort Lewis, where he trained for nine or 10 months before the Japanese bombed Pearl Harbor. A truck driver in the 41st Infantry Division and the 162nd Infantry Regiment, he eventually headed to Australia to help defend the South Pacific. At age 92 and on hospice care, John recalled fondly his time in the Army – and the day he headed home.

He saw combat in New Guinea, the Philippines and South Pacific Islands before the war ended. “Truman drops the biscuit on Japan. Bang the war is over. I’d been there 42 months and we came home in 19 days – into Hawaii and San Francisco,” John recalled. “The most beautiful sight you ever seen - we were coming home going under the Golden Gate Bridge on a beautiful day. Your morale is 400 percent above normal. We saw three Christmases in the South Pacific and those palm trees don’t look like Christmas.” Back up to Fort Lewis and John was honorably discharged, a Technician 5.

November is a special month for John’s family in two ways. First, it’s National Home Care and Hospice Month. Second, it’s Veteran’s Day. While John received hospice care, his military service was also being honored by the staff of Providence Hospice of Seattle, who listened to him talk about his time in the Army and acknowledged his service. During this year’s National Home Care and Hospice Month Providence Hospice of Seattle is also moving forward with its We Honor Veterans program, which offers end-of-life care designed specifically for veterans. John Hogan didn’t know anything about hospice care when he was diagnosed with cancer in May and his doctor offered him a range of choices – from aggressive treatment to care focused on comfort and quality of life.

“Two options – medical, chemo and the rest of the stuff,” said John, who was chipping golf balls in his backyard until he was suddenly diagnosed. “I said, no, I don’t want that. I want this one – to live normally, live comfortably, have the nurse come in and that’s the way I want to go.” And that’s how it went duing his time on hospice care John lived in the Greenwood home where he and his wife Betty of 51 years raised their three children.

Providence Hospice of Seattle provided the nurses, walker, wheelchair, social worker, medicine, and other services he needed. John got to enjoy time with his children and grandchildren and all the friends and neighbors who visited him. “It’s the best,” he said of the hospice care. “I couldn’t imagine help like this. It’s wonderful.” Added Betty, “We really couldn’t get along without them because I wouldn’t know what to do.” John said the thing that surprised him most about his disease was having so many people come by his home to say hello. “The advantage, when you get cancer, the good Lord’s telling you you’re not only here for a certain period and you know that. You have an appointment with me. You don’t know the date, but at least you know it’s coming closer.”

His priest from Christ the King parish, just down the street, offered spiritual comfort. John reflected on everything he’d gone through in life, including his military duty. Born in Butte, Mont., in 1918, John never graduated from high school, but worked several jobs – in department stores, as a waiter, in the cooper mines – before his family moved to Seattle. After being discharged from the Army he worked in the shipyard at Tacoma on flat top aircraft carriers, then came to Seattle and found a job at a lumber yard in Ballard, where he worked for 15 years before working for the railroad. At age 41 he met and married Betty, who volunteered in the Catholic Seaman’s Club coffee shop. The have three children and six grandchildren. John’s favorite thing during his last months of life was seeing those grandchildren, although he was no longer able to play ball with them in the backyard. But he remained philosophical.

“It’s hard. But there’s a reason. There are no accidents out there. Everything you do is providential. You’ve got to believe that.” As for the care he received? “Gee, it’s a good program. I would tell anybody before they go to their maker to take a trip through hospice first.”

Providence Hospice & Palliative Care proudly supports the national We Honor Veterans program (www.wehonorveterans.org),which offers end-of-life care designed specifically for those who have courageously served our country. For more information about our services and locations, visit www.ProvidenceHospiceWashington.org.

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Tuesday
Oct042011

Advice from Bob: A patient's top tips 

Editor’s Note: The following article was developed by a Providence Regional Cancer System patient, Robert R. Largen and his wife/editor Rosemary Shold. Bob received a diagnosis of “stage four, non-smoking, Agent Orange induced, lung cancer on October 31, 2001.” Below are some of his top tips for how he personally manages his cancer. The views reflected below are his own. If you’d like add your own tips, please leave a note in the comments.

  1. Have someone accompany you to any doctor’s appointments or consultations. This person will help you absorb all the information that comes at you. Take notes.
  2. Repeat back to the nurse or doctor any instructions that are given to you. Follow the instructions as closely as you can.
  3. If possible, have a health professional other than the treating doctors and nurses guide you through the process. (Editor’s Note: Bob has a daughter Catherine, who is also an RN. There are many resources like this in our community, please don’t be afraid to ask if you’d like to be directed to one).
  4. Keep a daily log of your health. It is a helpful resource when the nurse and doctors ask, “How is the patient doing?” And, “When did the symptoms start?” We found that the combination of happiness for making it through the day and fearfulness for what tomorrow may bring made for very poor long term memory.
  5. Do something each day to better the future for the family, e.g., estate planning, distribute possessions, contact your pastor, open or close bank accounts, etc.
  6. Make each day count. Achieving what is essentially a positive attitude is difficult as it is easy to be drawn down in the morass of the situation. This activity requires extreme mental discipline.
  7. Take advantage of any counseling offered by the hospital or clinic.
  8. Develop a network of support. We sent out 45-50 letters informing people of my diagnosis. As a result, each day’s mail brought something for me to look forward to. (Editor’s Note: This is an excellent example of where an electronic network like Caring Bridge would be helpful, Providence is currently in the process of linking up with this resource.)
  9. Try to keep as near normal routine as possible in a situation in which everything has changed. We celebrated my 75th birthday with a card party. I received over 100 cards in the mail. Once again, each day’s mail brought something to look forward to.

Have your own tips? Leave us a note in the comments!

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Monday
Sep122011

It is a celebration: Providence hospice services help retired professor give lesson in celebrating life

“It is a celebration, and that’s a surprise to me,” says retired professor David Hitchens after several  months of hospice care following a diagnosis of inoperable lung cancer. Hospice has given him and his wife Joan the gift of time. Time to make plans. Time to connect and reconnect with loved ones.  Time to reflect on life. Time to share memories. Time to laugh. Time to love.

Hitchens, age 72, is dying. He’s received hospice services from Providence SoundHomeCare and  Hospice in his home in Olympia, WA since February and says the choice to go on hospice care after he was diagnosed with terminal lung cancer has been a “great decision.” He’s already outlived his  sixmonth prognosis. He’s not in pain. His family has come together to support him. His friends visit. And many of his former students have written on a tribute blog about how their former professor impacted their lives.

His 41 years of teaching and questioning at The Evergreen State College in Olympia comes through as he looks around his bedroom and asks, “Am I doing this right?”

Because Hitchens is a teacher – always looking for answers and prodding others to do the same – he  wonders if his time on hospice is going according to plan. “The hospice experience for me so far has been different than I could have anticipated because I wasn’t sure what having terminal lung cancer was going to mean in terms of how I was going to feel physically. What was going to go on? Was I going to deal with excruciating pain? Was it going to spread to my brain? How afraid of this am I? Or am I afraid of it?”

Many remember Hitchens’ unique teaching style and openness to different ideas. When evaluating his students, Hitchens always asked them to reflect on what they discovered that surprised them as a consequence of their studies in his class.

Hitchens now is the one reflecting on his discoveries. “This is one of the big moments and not  verybody has the length of time, whatever the ETA is for my expiration date. It’s still out there. I’m  oming in for this landing and is everything under control? Am I doing it right? I’m not sure what it  eans for me. I’m trying to be as real as I know how.”

As Hitchens lives life as a hospice patient, receiving nursing visits once a week, taking advantage of massage therapy and having all of his questions patiently answered, he is surprised to learn that he’s such an exception. Nearly half of families who access hospice services do so in the last two weeks of life. In a medical system designed to fix people and cure diseases, not all physicians are comfortable recommending hospice care to their patients – and even fewer patients and their families are willing to accept it, fearing that they’re “giving up.” But statistics show otherwise.

A study published last year in the New England Journal of Medicine found that terminal lung cancer patients who began receiving hospice care immediately upon diagnosis not only were happier, more mobile and in less pain as the end neared, but also lived nearly three months longer than those who didn’t receive such care. Similar studies have found the same to be true for patients with heart failure and chronic lung disease.

This is Hitchens’ third bout with cancer. The first time – in 1988-89 – he successfully fought Hodgkin’s lymphoma with a year’s worth of chemotherapy. But he was sick and isolated. “The chemo wouldn’t have allowed me to have these moments (I have today),” he says. “The mood, the atmosphere, the interaction, would have been different. I’m very grateful and I’m surprised. I sit around and think, `I kind of won the raffle.’ Numerous family celebrations have given the grandchildren time to be integrated in this end of life recognition. And they’ve spent one-on-one quality time with Hitchens. “I want us to get as many  positive things out of this as we can,” he says. "It can’t all be sadness and gloom. We need to have some fun."

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Providence SoundHome Care and Hospice
3432 South Bay Road NE
Olympia, WA 98506 F
or hospice referrals
t: 800.221.8022 or 360.493.4650
For all other hospice calls
t: 877.620.3286 or 360.493.5900
www.providence.org/pshch

Thursday
Jul142011

Introducing Jan Crawford, Breast Cancer Survivor 

Photo Caption: Jan Crawford, and her daughter Cortney Crawford stand with James Lechner, MD, medical director of the Providence Regional Cancer System, following his lecture at the Cancer Survivor Event in June of 2011.

I've had the honor of meeting Jan Crawford three separate times in the past month. When we met most recently, she was excited to share the news about her latest accomplishment. She had just been credentialed as a Certified Cancer Exercise Specialist. This meant she could officially start turning her passion into a profession. She wants to use her exercise expertise and her personal experience with cancer to help others figure out how activity can help them get through cancer, too.

Jan's path towards this goal started three years ago. In October 2007, she had a mammogram that revealed lumps in her breasts. She wasn't overly worried, though. Ever since high school, she had dealt with an unusual number of benign breast lumps. However, this time was a little different. She decided she wanted to end the underlying stress she felt whenever she found a lump. Her solution: to undergo a prophylactic (preventive) double mastectomy.

Her surgery took place on December 19, 2007. Expecting a routine recovery and a little downtime to enjoy the holidays, she was devastated to learn instead that she had breast cancer -- including aggressive cancer on her right side. Her surgeon told her she needed more surgery as soon as possible, and she was back in the operating room the next day.

In January she started chemotherapy treatments. And in May she underwent reconstructive breast surgery. All of this left her unable to work for 10 months; not surprising due to her on-the-feet job as a flight attendant. She finally went back to work, but then learned that surgery was not quite finished for her. Possible side effects of her chemotherapy drugs included uterine or endometrial cancers, so she decided to have a hysterectomy. She says she doesn't regret that decision because her physician found suspicious areas during surgery that may have led to cancer in the not-so-distant future.

Today Jan talks easily about her cancer, treatment and the many emotional and psychological issues that have accompanied her experience. She emphasizes how much exercise helped her cope with what she was going through, including the "fog of cancer" that she felt stuck in frequently. Now she wants to help other people with cancer discover how activity can improve the quality of their lives, too. She's currently exploring the practical side of how she can make this happen, and hopes to have a place available soon where she can offer guided exercise sessions for other cancer survivors.

In future blog entries that Jan is planning on writing, she'll talk more about her experiences as a breast cancer survivor and her dream of sharing the benefits of exercise with other survivors.

Please, welcome Jan to the blog.

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Friday
Jul082011

Still considering Integrative Care Services? Here's what others are saying

Integrative Cancer Care Staff & Advisors: Back row: Jana Wiley, LAc, RN, BSN, MPA, OCN; Evan Hirsch, MD, ABHM; Chad Aschtgen, ND, FABNO; Maureen Oar, RYT; Chris Lower, Rosemary Spyhalsky, RN, OCN, HN-BD; Karen Buckley, LICSW, ACSW, OSW-C; Dennis Clarin, MTCM, LAc, Dipl.Ac Front row: James Stegenga, LAc; Joanna Cashman, RN, E-RYT Patients at Providence Regional Cancer System have access to body-mind-spirit resources, which complement traditional therapies, enhance quality of life and encourage the best possible outcomes for the whole person.

Here's what people are saying about these resources:

  • I had cancer the first time in early 1980’s; there was no supportive care. I am so grateful to have it for my second (and recent) cancer diagnosis. It has made the healing process (including mental, physical, nutrition and support) all extremely valuable to me in my recovery. Thank you for being in Thurston County!
  • I would not want to go through cancer treatment without these services − they all help so much.
  • These programs are great and help in all ways to help us fight our battle with [being] 'just a statistic;' gives us more tools for the fight.
  • My naturopathy visits have provided a wealth of information to strengthen my diet and supplement program. I feel this has given me the best possible plan to support my traditional treatments.
  • One day, out of the blue, it dawned on me that the burning sensation was gone from my feet. Hooray for acupuncture!
  • t’s great to have an experienced person doing the massage since deep tissue massage is not good for those during chemo.
  • The yoga class is a wonderful journey, interacting with and supporting each other as we go through the cancer journey together.

Integrative Care Services

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