Providence Regional Cancer System Survivorship Blog

Entries in Making Changes (7)

Tuesday
Jan032012

Celebrating one year of blogging...

A year ago we officially launched our blog. Although we had been blogging for a few months prior to telling anyone it's only been a year that our patients have actually known about the blog. In fact, in just one year over 4,000 people have visited our blog! We're honored that so many people have found our information both helpful and encouraging.

In the spirit of New Years Resolutions we'd like to direct you back to some of our favorite "life changes" articles. And as always, leave us a note in the comments if you want us to cover something new.

  • Quit Smoking: As a patient undergoing cancer treatment the effects of both first hand and second-hand smoke are clearly document, and it's not good. Check out this article from our very own Dr. Harris for more information >>
  • Exercise more to help your cancer treatment: Last year Laura, an occupational therapis at Providence who specializes in lymphedema, oncology rehabilitation and manual therapy talked about exercising during cancer treatment. Read more about the positive effects here >>
  • Change your diet, recover energy: When Dr. Sui wrote about taking charge of your cancer-related fatigue he sparked a great dialogue about changing your diet. Read the reader response to his article here >> 
  • Learn how to cope with the fear your cancer will come back: Dr. Whitten's two part article covered not just understanding the fear your cancer will come back but also provided five strategies for coping. Read more here >>

 

 

Friday
Jul222011

Part II: Five strategies for coping with fear of recurrence

In my previous post we talked about the fear your cancer will come back. If you missed it you can read it here (click on this link).

Strategies to cope with fear of recurrence include:

  • Talking with your health care provider about a customized follow-up care plan based on your diagnosis and treatment.
  • Gathering reputable, evidence-based information. Your health care team can help identify what symptoms to monitor and what not to worry about; every ache does NOT mean the cancer has recurred.
  • Reducing your stress level. Different folks find different strategies helpful – experiment with a variety of methods (e.g., walks, yoga, gardening) and create a toolbox of calming thoughts and behaviors.
  • Understanding that fear of recurrence is normal – you are not “crazy” for feeling fearful.
  • Getting help.

Although fear of recurrence is a completely normal response, that does not mean you need to suffer through it alone. If the emotional upset interferes with what you want to be doing and thinking about, help is available (e.g., individual counseling, support groups, etc.). If you had diabetes no one would suggest that you simply will your blood sugar into a normal range. Cancer can be an isolating enough experience; you need not suffer the emotional roller coaster by yourself. Fear, anxiety, and depression can be treated and the quality of your life improved.

Many cancer survivors report that as they work through the distress, they feel renewed vigor, have a greater appreciation of life, improve their health behaviors, reassess their priorities, and experience a greater sense of “being in the moment.” Providence Regional Cancer System has resources and support to help you navigate fear of recurrence.

Wednesday
Jul202011

Part I: Understanding the fear your cancer will come back

Editor's Note: We have broken up Cobie's post into two parts, "Understanding the fear your cancer will come back" and "Five strategies for coping with fear of recurrence." We will post Part II on Friday. As always, feel free to leave comments or questions at the end of this post or in our Patient Discussion Forums.

One of the most troubling aspects of ending cancer treatment is worrying that the cancer will come back; indeed some studies suggest that up to 90% of cancer patients report fear of recurrence. Certain events may trigger or exacerbate the fear:

  • Doctor visits
  • Medical tests
  • Media reports about cancer
  • Anniversary dates of the diagnosis, ending treatment, etc.
  • Hearing that a friend or loved one has been diagnosed

With time, the fear usually lessens. But it can be quite debilitating and disruptive. You may focus excessively on your body and/or ambiguous symptoms and leap to catastrophic conclusions. You may feel you cannot plan for the future, experience despair and feel emotionally paralyzed.

Life after cancer has been described as living with the sword of Damocles over your head. [Greek legend describes that Damocles was a courtier to King Dionysius. Damocles was in awe of the King's great fortune in life, so the King invited him to exchange places with him for a day. During a lavish banquet, Damocles discovered that a sword hung over his head suspended by a single hair. Only then did he understand the constant and anxious dread that a King truly feels. His fear was so great that he could no longer enjoy the riches around him.]

My doctoral dissertation focused on fear of recurrence. A major finding was that the stage of disease/prognosis was not related to anxiety about recurrence. Some women with early stage disease and an excellent prognosis were more fearful than those with later stage disease. Your fear may not align with data or statistics on recurrence likelihood, but that does not mean the fear is not real and upsetting.

Feeling fear that your cancer will come back is completely normal. In our next post I'll share with you five strategies for coping with the fear of recurrence.

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Friday
Jan212011

Take a minute, and just breathe

From the moment of diagnosis, some patients have often told me “I feel like I have a weight on my shoulders, I just want to curl up.”

This urge to “curl up” is a normal self protective response that can lead to problems with functional movement down the road. Individuals can often hold a protective posture, after many types of surgery and then again during recovery and adjuvant treatment.

Most often my patients hug themselves as a way to protect the body or limb from injury causing the head to come forward and down—picture a turtle hunkering in. If this posture is held for to long, our bodies begin to think of the position as “normal.” Over time reaching for a coat out of the closet or turning to look behind you while driving suddenly becomes a challenging activity.

  1. Take a slow deep breath, lifting from the belly to the chest and easing the head back.
  2. Exhale slowly, allowing the shoulders to fall gently down, rolling back.

Learning to find and incorporate a healthy posture goes beyond simple body positioning. It takes time and practice but it’s worth it! Several survivors have reported “I feel taller” and “my entire body moves better.”

Cancer treatment is a tremendous journey, be kind to yourself and protect yourself with a proud posture.

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Thursday
Jan132011

Reader response: Changing your diet to recover some energy

In a recent post, “You don’t have to put with cancer-related fatigue” Barbara, a blog reader, generously shared with us how she changed her diet as part of the process to get her energy back. I thought it might be beneficial for our other readers if Iresponded to some of the key changes she made and why they worked. Thank you Barbara for getting this conversation started!

At this point I try to eat nothing out of a box.
Processed foods have less nutritional value than ‘whole foods’. What are whole foods? Foods that are not altered by preservatives and chemicals in the preparation process; whole foods are anything that is ‘made from scratch.’ Examples: cooking your own oatmeal from raw oats, adding your own spices, nuts, etc., and not using a package that you simply pour water over to make.

Try to eat five different colors of fruits and vegetables--5- 8 servings a day. I do eat a green salad daily.
Various colors of fruits and vegetables can assist in obtaining a variety of nutrients contained within. For instance: a lot of beta-carotene and Vitamin A is found in orange colored vegetables such as yam, squash, and carrots. Dark green leafy vegetables (chard, kale, spinach) are high in iron content. A green salad provides fresh food and roughage. This provides a good source of vitamins, minerals, nutrients, as well as helping to keep the digestive system moving along.

I am supposed to avoid baked goods, but don't always. This includes even whole grain breads.
Baked goods usually contain flour and sugar, which represent carbohydrates (sugars) once broken down through digestion. Because the human body needs fewer carbohydrates to maintain a healthy balance it makes sense to limit the consumption of baked goods. As a rare treat, this is okay. If at all possible, whole grain breads are best. Flour is processed from its whole grain form to create ‘white flour.’ The processed end product of white flour has far less nutritional value than a whole grain option.

I used to drink two glasses of milk a day, I now limit milk to a splash on my steel-cut soaked- overnight oatmeal--there go the Cheerios and bran flakes.
This recommendation is an excellent example of why there is no substitute for talking with your health care provider about your specific situation. For some cancer patients, the intake of milk could be very beneficial. I’m assuming that this recommendation was made to you to cut down your fat content but again, this should be handled on a case by case basis under the supervision of your provider.

The naturopath said to eat two cups of cooked whole grains a day.
Combining a whole grain with a protein such as beans (black or pinto) and legumes (lentils) results in a ‘perfect protein’ that contains all the essential amino acids necessary through proper nutrition which results in the building blocks of the nutrients needed by the human body.

Eggs, beans and nuts and yogurt are my main protein with some chicken, lamb, venison and a little cheese. I was told to limit red meat which I already did. A little protein with each meal.
Essentially, you are cutting down your fat content by selecting protein sources which are lower in fat. If at all possible go the extra step to select organic, free range eggs. If one is going to eat lean meats, try for a local source that is organically fed. I mention this, but it is a tricky issue, as this is more expensive. Red meat refers to beef, pork and lamb. The American Institute for Cancer Research recommends eating no more than 18 oz. per week of red meat.

Changing your diet is never easy. If anyone has other tips they would like to share we would love to hear them. Keep up the great work Barbara!

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