Providence Regional Cancer System Survivorship Blog

Entries in Survivorship (7)

Friday
Mar252011

Life After Cancer: 31 Years and Counting

I’m a long-time survivor of cancer. I was diagnosed with childhood leukemia in 1980, when I was 13. No age is a good age to learn you have cancer, but 13 seemed particularly rough. Fitting in? No chance after losing my hair, missing three months of school, and choking down more pills a day than all my grandparents combined.

Years later I learned I was actually lucky to get my kind of cancer when I was a teenager. At the time, standard treatment for ALL (acute lymphoblastic leukemia) involved very high doses of radiation to the brain. For younger kids, whose brains were still developing, this could lead to learning disabilities and difficulties at school. Other serious problems could occur, too, including brain tumors caused by the radiation therapy and certain chemotherapy drugs.

I was very fortunate to avoid learning disabilities. And so far I’ve been spared other medical late effects of treatment. But even now I still worry that something could go wrong.

One way I’ve coped with these lingering fears is to work in the healthcare field. As an English major, healthcare communications made career sense. At work I’ve written articles, brochures, booklets and Websites about cancer. I’ve interviewed doctors, scientists, nurses, social workers and patients. And along the way, I’ve learned about the medical side of cancer as well as the many ways it can infiltrate your life – physically, emotionally, financially – you name it.

When a co-worker at Providence St. Peter Hospital created this blog, I wanted to figure out a meaningful way to contribute. I plan to write about issues I’ve dealt with as a cancer survivor. Many of these topics have already been expertly addressed in the blog. But hopefully something I write will resonate with someone, and make a small difference in the way he or she copes with their own cancer experience.

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Monday
Nov082010

Who is a cancer survivor? What's in a name?

The National Cancer Institute, along with many other health organizations, define a Cancer Survivor as anyone diagnosed with cancer – from the moment of diagnosis until the end of life (and that end could happen years after diagnosis and be caused by something besides cancer). In addition, The National Coalition for Cancer Survivorship (NCCS) has expanded the term to include family, friends and caregivers.

Survivorship is a popular term now in the cancer community. Yellow bracelets scream LIVESTRONG, event participants refresh at Survivors’ Villages at Susan G. Komen races, and there are even medical journals focused solely on survivorship issues.

Twelve million Americans alive today have been diagnosed with cancer, and those numbers are increasing each year due to:

  • Earlier diagnosis through screening
  • More effective treatment
  • Prevention of secondary disease and disease recurrence
  • Decreases in mortality from other causes

There are many definitions of the word survivor, including:

  • One who lives through an affliction
  • To carry on despite hardships or trauma
  • To remain alive or in existence

It turns out that the term cancer survivor evokes a wide range of reactions, similar to the reactions towards battle and war metaphors (i.e., fighting cancer or battling the disease) when describing cancer. How can one label describe everyone diagnosed with cancer, from those with early stage disease who are treated and may be considered cured to those in hospice care at the last stages of life? Some argue it cannot and that we need to find better, more descriptive and accurate terms. Others embrace the title of survivor and fully identify with it.

My feeling is that you can welcome or reject the label. As someone who has worked with cancer patients and their families for 30 years, I am just thrilled that researchers, clinicians and finding agencies are FINALLY paying attention to all the challenges that accompany a diagnosis of and treatment for cancer.

What are your thoughts? How do you feel about the term "cancer survivor?" 

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